The Day My World Changed Forever

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My Parkinson’s story goes like this…… I would say that about around the end of 2013 I noticed a change in my body. I was more tired and not sleeping well. I was a hot mess sort of speak. I had pain I couldn’t explain especially on my right arm. I ignored it thinking I was just getting older and was just out of shape.

For months I continued to feel the same and I noticed some new symptoms. I began losing my motor skill on my right arm/hand and I wasn’t swinging my arm like most people do when they walk. Also brushing my teeth with my dominant right hand just wasn’t the same. I was struggling and so tired all the time and the pain in my arm into my neck was worse.

In April of 2014 I decided to pay a visit to my primary doctor. I usually didn’t visit him much because I was pretty healthy. He saw me that day and being that I worked as a Medical Assistant in the past went in there confident it was nothing more than a pulled muscle or pinched nerve. My primary thought the same after some quick tests. He sent me on my way with prescription for steroids and told me if it didn’t get better I needed to see a Neurologist. I took the prescription with no intention of actually filling it.  I knew the side effects of steroids and I didn’t take them.

In June I made an appointment to see a Neurologist. He did a lot of neurological movement tests. He also ordered some blood lab test. I began researching my symptoms like a lunatic because the neurologist did not give me an idea as to what he was thinking. I had all tests done and returned to him in July. I brought my children with me as they were on summer break. When he entered he explained  all blood test were normal but that he wanted to do a brain MRI. He asked if I could send the children to sit in the hallway I guess because he didn’t know what my reaction would be to the news he was about to give me.

As I sat there and the children sat in the hallway he said ” Did I discuss with you what I think it may be?” which I replied “no”. He stated “I want to do an MRI but I think you may have Young Onset Parkinson’s Disease” I sat there and had no reaction just said “ok.” I think I was just numb and in disbelief. I was thinking he has to be wrong only old people get this. But he said there were no specific tests to diagnose it. That it was done by ruling other possibilities out.

So I left the room gathered my children and checked out. My son kept looking at me and asked what the doctor had said. As soon as we got in our vehicle I cried and my son asked are you going to die mom. I had to get myself together and explain what Parkinson’s was right away we even googled it when we got home. I called my husband from home and explained to him and he immediately said that can’t be. The doctor had to be wrong. My mom felt the same she thought that couldn’t be right. We decided Id have the MRI and go from there.

MRI results came in and they were normal. My family wanted me to make sure it wasn’t a pinched nerve or something with my neck so I had a Cervical Spine MRI as well. And was also tested for lime disease. Everything was ruled out and I even saw a Chiropractor which agreed I had a movement disorder.

My husband had a hard time accepting it so we decided I would get a second opinion from a Movement Disorder Specialist. In September of 2014 it was confirmed I had Parkinson’s Disease. I was so heartbroken that day to see the sadness in my husbands eyes but he said I will always be here for you and will take care of you.

Taken the month I was diagnosed

Some days are worse than others. The side effects of the medications can sometimes be worse than the actual symptoms. I usually see the doctor every three months. I hate when he adjusts the meds because that means horrible nausea for me. I’m strong though and I’m getting through it one day at a time. I have hope for a cure.

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20 thoughts on “The Day My World Changed Forever

  1. We love you and are so proud of how strong you are considering all the changes this has caused in your life! Keep fighting!! Xoxo

  2. My name is ferdinand ortiz jr. and I am this beautiful women’s husband. And I just want to tell everyone that follows my wife’s blog that not only is she is an incredible person, shes also a great mother to our two children, the love of my life and is a tremendous fighter who taught herself how to create and design this blog which also double as therapy for her. I guarantee you to will enjoy her posts. I’m very proud of the job she has done. ❤️

    1. Thank you for those beautiful words, for supporting me in this and all endeavors and for being a great father and husband. Love u very much xoxo

  3. This blog is a testament to how strong you are and shows the immense depth of the generosity of your spirit and heart as you share your story. I know you will be a source of comfort to other people with Parkinson’s. I love you, my friend.

    1. Thank you for those sweet words. You’re friendship means so much to me. Thank you for being there for me ?

  4. Hi Bernice I feel like I’ve known you for a little while now because we talk thru messenger lol!! I’m sorry about your disease….thank you for sharing your experience I just hope and pray that you and your family can keep coping with it. I’m scared .myself of having diabetes since I had gestational diabetes with last pregnancy….but I keep procrastinating to call the doctor. Anyways I know that we will have many conversations soon so stay positive girl!

  5. Thank you so much for sharing your experience. One of my friends has recently been diagnosed and it’s so helpful to have a little bit of insight into what she must be going through. I think it’s really important that topics like this stop being taboo so we can all gain more understanding about other peoples lives, and yours is so beautifully written. Kia Kaha from New Zealand.

  6. I’m so sorry that you are having to go through this, but you are brave to share your story. It sounds like you have a great support system.

  7. Thank you for bravely sharing your story. I can’t imagine how difficult it must have been to get that kind of news, especially knowing you would be seeing your children immediately after (I find it always hard keeping it together for them). I wish you all the best.

  8. Bernice – I’ve just started reading parts of your blog and I’m so impressed with it and proud of you. When you get a diagnosis like yours, you can either give in to it or pick yourself up and be strong. Good for you for the wonderful home business you started and for this website. I found I had an unused pot of your buttercream body butter in my closet about three weeks ago, which I bought a year or so ago! I took off the lid and it was still perfect – still like whipped cream. Can’t believe it’s been so long since I dropped by. Must do it again soon!

    1. Hi Jacqui at first I was thinking who is this lol. Thank you for your kind words. I hope you and the boys are well. I’m by no means a writer like you. It just doesn’t come natural to me but I’m stepping out of my comfort zone. Thank you again hope to see you soon

  9. Bernice, since experience is the best teacher, I can’t really imagine what you must be going through. The fact that you’re writing about it and sharing your feelings though – incredible! Impressive! It takes a strong and caring person to share the bad along with the good, that much I do know. Thank you for inviting so many to share and support you in this journey.

    1. Hi Jennifer thank you for visiting. Your encouraging words mean so much to me. I will be posting more soon 🙂

  10. Your story has touched me in ways I cannot explain. Your strength, courage, love and positive attitude towards life is an inspiration for me. I also admire your husband’s wonderful attitude. I hope to see you soon…much love…

    1. Thank you Nellie. I appreciate your kind words. I’m thankful for the support and strength my family gives me. They keep me going ?

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