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My Parkinson’s story goes like this…… I would say that about around the end of 2013 I noticed a change in my body. I was more tired and not sleeping well. I was a hot mess sort of speak. I had pain I couldn’t explain especially on my right arm. I ignored it thinking I was just getting older and was just out of shape.
For months I continued to feel the same and I noticed some new symptoms. I began losing my motor skill on my right arm/hand and I wasn’t swinging my arm like most people do when they walk. Also brushing my teeth with my dominant right hand just wasn’t the same. I was struggling and so tired all the time and the pain in my arm into my neck was worse.
In April of 2014 I decided to pay a visit to my primary doctor. I usually didn’t visit him much because I was pretty healthy. He saw me that day and being that I worked as a Medical Assistant in the past went in there confident it was nothing more than a pulled muscle or pinched nerve. My primary thought the same after some quick tests. He sent me on my way with prescription for steroids and told me if it didn’t get better I needed to see a Neurologist. I took the prescription with no intention of actually filling it. I knew the side effects of steroids and I didn’t take them.
In June I made an appointment to see a Neurologist. He did a lot of neurological movement tests. He also ordered some blood lab test. I began researching my symptoms like a lunatic because the neurologist did not give me an idea as to what he was thinking. I had all tests done and returned to him in July. I brought my children with me as they were on summer break. When he entered he explained all blood test were normal but that he wanted to do a brain MRI. He asked if I could send the children to sit in the hallway I guess because he didn’t know what my reaction would be to the news he was about to give me.
As I sat there and the children sat in the hallway he said ” Did I discuss with you what I think it may be?” which I replied “no”. He stated “I want to do an MRI but I think you may have Young Onset Parkinson’s Disease” I sat there and had no reaction just said “ok.” I think I was just numb and in disbelief. I was thinking he has to be wrong only old people get this. But he said there were no specific tests to diagnose it. That it was done by ruling other possibilities out.
So I left the room gathered my children and checked out. My son kept looking at me and asked what the doctor had said. As soon as we got in our vehicle I cried and my son asked are you going to die mom. I had to get myself together and explain what Parkinson’s was right away we even googled it when we got home. I called my husband from home and explained to him and he immediately said that can’t be. The doctor had to be wrong. My mom felt the same she thought that couldn’t be right. We decided Id have the MRI and go from there.
MRI results came in and they were normal. My family wanted me to make sure it wasn’t a pinched nerve or something with my neck so I had a Cervical Spine MRI as well. And was also tested for lime disease. Everything was ruled out and I even saw a Chiropractor which agreed I had a movement disorder.
My husband had a hard time accepting it so we decided I would get a second opinion from a Movement Disorder Specialist. In September of 2014 it was confirmed I had Parkinson’s Disease. I was so heartbroken that day to see the sadness in my husbands eyes but he said I will always be here for you and will take care of you.
Some days are worse than others. The side effects of the medications can sometimes be worse than the actual symptoms. I usually see the doctor every three months. I hate when he adjusts the meds because that means horrible nausea for me. I’m strong though and I’m getting through it one day at a time. I have hope for a cure.
To learn more click on the link http://www.parkinson.org/understanding-parkinsons/what-is-parkinsons